WP09 - Childhood Cancers

 

Leader: Gilles Vassal

 

SIOPE is working closely with the European Committee of Childhood Cancer International (CCI) – the organisation representing cancer parents, patients and survivors in a continuation of a long-term and instrumental partnership.

The JARC is an important opportunity to advance some of the key objectives of the SIOPE Strategic Plan, developed in cooperation with parents, patients and survivors, and to build on achievements of previous EU projects where SIOPE played a key role: ENCCA, ExPO-r-Net, PanCareSurFup and the European Partnership for Action Against Cancer (EPAAC). It is also set to further strengthen the existing cooperation between paediatric and adult oncology.

 

 

The objectives of the WP coordinated by SIOPE with the participation of 24 JARC partners are:

  1. Defining collaborative measures for ensuring access to standard treatments and accelerating access to innovative therapies;
  2. Recommending solutions for delivering optimal care and research for young people with extremely rare cancers;
  3. Consolidating guidelines and recommendations on models of healthcare for survivors of childhood cancers.

SIOPE and the Work Package partners are working towards these objectives through 4 tasks:

1. Formulating recommendations to solve bottlenecks and barriers in accessibility of standard treatments across Europe (essential medicines and radiotherapy); Lead: SIOPE

2. Formulating recommendations to increase and facilitate timely access to innovative therapies for children and adolescents with newly diagnosed high-risk and relapsed malignancies; Lead: SIOPE, Sub-task Lead: VHIR – Fundacio Hospital Universitari Vall d’Hebron – Institut de Ricerca

3. Formulating solutions to deliver optimal care and research for young people with extremely rare cancers; Lead: GPOH – German Society of Paediatric Oncology

4. Formulating proposals about models of healthcare for survivors of childhood cancers, including long-term follow-up, transition to adult medicine, and the use of the ‘Survivorship Passport’. Lead: PANCARE CCI Europe is participating in all tasks of the Work Package.